Monday, December 20, 2010

Little Lu's Crew

Little Lu's Crew will be walking Feb. 26 in the 1st Annual It's My Heart South Florida Chapter Congenital Heart Defect Awareness Fun Walk/Run! 
Join us in raising money for Congenital Heart Defects (CHD) by joining Lu's team or donating to help us reach our team goal! ♥ 
 Follow this LINK!

Tuesday, December 14, 2010

A Bump in the Road

We were all set to leave, yesterday, for St. Petersburg (Lu's surgery pre-admission testing was supposed to be this morning at 9am and her surgery was set for tomorrow morning) but after calling the nurse at the surgeon's office yesterday morning, they recommended we change the date since Lu had been sick the previous week.

It was pretty tough news to hear, not just because we were all packed and ready to go, but also because we had been very excited to have a healthy baby home for the holidays and ready to start the new year as a normal family. I have also been concerned about her health because she hasn't gained weight in about a month so I know that is a sign that she needs to have the surgery soon. We know we need to do whatever we can to reduce the risks of anesthesia so we have come to terms with the fact that this is what is best for Lu.

Her new surgery date is set for January 3rd.

Since we will be home for the next few weeks after all, I have put together a Holiday Gift Giving Event to help sick children, who have to spend their holidays in the hospital, have a nice Christmas. I will be accepting new toys and gifts at my house on Tuesday, 12/21 and will be delivering them to the Holmes Regional on the 22nd. I will also be accepting donations for gifts through paypal now through December 21st. You can use my email (JunebugFL82@aol.com) on the paypal site or you can visit Lu's Facebook page: Little Lu Favero and click on the Holiday Gift Giving Donations tab at the top of the page.

Here is a link to the Facebook event: Holiday Gift Giving Event

Thank you and Happy Holidays!

Saturday, December 11, 2010

Pulse Oximetry Testing Can Save Lives

From: http://perfectbrokenhearts.wordpress.com/category/chd-research/pulse-ox-testing/
Approximately 36,000 babies are born each year with a CHD.  (American Heart Association Website). Less than 10% of CHD’s are diagnosed before birth.

This year approximately 4,000 babies will not live to see their first birthday because of Congenital Heart Defects. (Children’s Heart Foundation)

Most people are unaware that Congenital Heart Defects (CHDs) are the most common birth defect in America, affecting approximately one in one hundred, or 40,000 newborns each year. CHDs are responsible for one third of all birth defect-related deaths and sadly 20 percent of children who make it through birth will not survive past their first birthday. Although a child is born every 15 minutes with a CHD, research continues to be grossly under-funded in America. Of every dollar the government spends on medical funding, only a fraction of a penny is directed toward congenital heart defect research. (Children’s Heart Foundation)
Click this LINK to read more about this simple and non invasive test that can help save the lives of so many babies.

Friday, December 3, 2010

Lu's Firsts

Since my last update, Lu has had a lot of firsts. She celebrated her first Thanksgiving, had her first professional Christmas photo shoot (besides the homemade one with mommy), met Santa Clause, and cut her first tooth! She also caught her first cold but it doesn't seem to be bad at all.

Thanksgiving was a blast. We did the usual huge family dinner at Yaya's house where Lu tried her first banana baby food and had a few small tastes of sweet potato casserole, which she loved! She sat in her excersaucer playing and talking while we all ate and talked about the last Thanksgiving where we announced my pregnancy via wrapped framed ultrasound photo. It was a fantastic day and we can't wait for next year when she can sit at the table, with a healthy heart, and eat all of the yummy food.

The Big Announcement- Thanksgiving 2009

video 





Lu's First Professional Photo Shoot









Lu and Sailor Meet Santa

BFFs- Sailor and Lucianna

Lu loved Santa!


Wednesday, December 1, 2010

Help a sick child have a nice holiday.

With Lu's surgery being set for December 15th, I started thinking about all the children that will have to spend the holidays in the hospital. We are hoping to be home before Christmas but there are many children who will not be able to be home to enjoy the holidays.

There are many things you can do to help those children have a happy holiday. For instance, you can buy new toys and donate them to your local hospital or stuff some stockings with fun toys and games for the kids to enjoy during their stay in the hospital. Craft kits, coloring books, games, and other activity based gifts are the most beneficial since it can be very boring and uncomfortable for a child who has to stay in bed and those sorts of fun projects offer a distraction from any pain they may be in as well. There are also play rooms on many pediatric floors so they are in need of new toys year round.

While Lu was in the NICU at HRMC, they used several homemade items like quilts, knitted blankets, hats, and booties. They also had cute homemade name plates for the isolettes and cribs, made from inexpensive craft store materials (this would be a cute  idea for kids to help with).

Her is a link with information on how to donate gifts to All Children's Hospital:
http://www.allkids.org/body.cfm?id=205

If you would like me to deliver the gifts when we are over there, let me know. We are bringing 3 cars over so there will be plenty of room!

There are also several local hospitals that could use your help:
http://hospitals.local-data.com/county/florida-fl/brevard/849/

Thanks Everyone and Happy Holidays!